Module: Fatigue and Energy Conservation
Janet L. Poole, PhD, OTR/L, Cindy Mendelson, PhD, RN, Laura Dyas, LSW, LPC, MA, Mary Alore, MBA
Developing a system of support
Use this printout to record your address, important phone numbers, and activities that occur on a regular basis.Printout PDF
Learning to ask for help
Asking for help is something that can be extremely challenging for everyone, but it’s necessary for a normal life.Printout PDF
Tips on asking for help
Asking for help is key to managing your symptoms and to living a full life. Consider these tips.Printout PDF
55 gentle ways to take care of yourself when you’re busy, busy, busy.
55 gentle ways you can take care of yourself when you’re pressed for time and attention.Printout PDF
Establishing a system of support (See also Coping Module)
Setting up a support system is important to managing fatigue and your physical resources. Support can come in many forms. At the end of this module, you will have an opportunity to start to build your support resources.
When we think of social support, we usually think of the people closest to us, such as family and close friends. However, there are many sources of support that fall outside this small network. In developing your support network, you must first identify all the areas in which you might need help (or support). This can be a bit uncomfortable, because you have to, for a brief period of time, focus on your limitations, rather than your strengths. But it is well worth the effort. Once you have your system of support in place, it frees you to not have to worry about the “what ifs,” because you have already planned for what might happen. A good support plan frees you to live in the present.
The key activity in developing a support plan is to identify all the routine activities that need to occur in a month. This includes all daily activities, such as getting the kids to school; weekly activities, such as grocery shopping; and any additional activities that may occur less frequently.
The purpose of the plan of support is to develop strategies to keep these activities running, even if you cannot do them all yourself. Your family does not need to take over everything. Widen your network to include friends, neighbors, and religious or social groups. But remember to pace yourself. Just because you used to do everything does not mean that you should continue to do everything. For example, instead of driving your kids to places by themselves, are there neighbors with whom you could carpool, who would then be available to fill in for you when you are sick? Do you have a neighbor who could pick up your prescriptions for you? If so, offer to get her prescriptions next time you go to the drug store. This way, not only are you asking for help when you need it, but you are setting up a reciprocal relationship with people so that you can help them to the extent your energy will allow. Then they will feel comfortable asking for your help, within your limitations.
Once you have worked this out, write it down because the other part of a support plan is that other people can put it into place if you become ill. So if you are suddenly sick, your husband, or friend, or relative will know who will take the kids to soccer, where to get the prescriptions, who has music lessons and when, and the emergency numbers.
Use the worksheet on “Developing a system of support“ to record important address and phone numbers and the activities that occur in your household.
See the resource on “55 gentle ways to take care of yourself when you’re busy, busy, busy“